Day 7

Gianna is doing well. She had her first "surgical procedure" today.  She did well through it.  They cut off all that excess skin.  I will take a picture of what it looks like now.  It's kind of like half an orange sticking out now.  It's wrapped with padded gauze and there is shoe lace like straps tying it down to the mechanism around the omphalocele.  I guess in the OR Dr. Buchmiller was able to get it down to skin level and the ultrasound showed that it didn't effect the blood vessels at all.  So the next step is rather confusing at this point and I really need some more clarification from Dr. Buchmiller.  There's a few ideas being tossed about at the moment.  I think I'll just wait until I get some clarification before I post them...it just causes a lot of miscommunication among people.  I want you all to have the right story. ;-) If you all haven't guessed by now the story changes daily anyway and Dan and I really never know what's going on.  Just wanted to let you all know that she made it through just fine and seems very comfortable right now. 

I'm laying down on my little window seat staring out at this rainy and gloomy day.  Doesn't really help to keep your mood very positive lol.  It's extremely difficult to not really know what the plan is.  Makes you feel like a ping pong ball...someone else has you in their hands and just keeps tossing you back and forth.  It's only been a week and I feel like we've been here for a month.  I feel like I've forgotten what normal life is like already.  It's the strangest feeling actually...I'm just sort of floating in limbo.  I never know what each day will bring, how long we'll be here, when she's going to wake up, when I'll get to hold her next, when her surgery will be etc etc.  There's talk about us now going home for a few months and coming back again....hopefully not through the holiday's lol.  We'll see we're talking with her tomorrow to get a better sense of the "plan" and I'll update you all afterwards.

Gianna's swelling has gone down considerably.  They gave her three or four doses of lasix and when I walked in this am she finally looked like my baby again.  She must feel so much more comfortable too.

So I will keep you all updated!
Love and prayers to all!
Dan, Kaite and Gianna